For the broken, malfunctioning, pained people of the world and their friends/family. Got pain? This is the place to be.
PARTNERED COMMUNITIES
Don't waste the relief!
What a terrible concept that my brain brings up from time to time.
No idea what to do anymore
I live with pain and agonizing sensations all day. As if my pain is not enough because "I got used to it", I get new kinds of pain every once in a while. I don't have health insurance, am unemployed (I'm trying the best I can, 2 days ago I went to job interview in agonizing pain), free healthcare doesn't care about me and were unethical towards me multiple times, family members are angry about me and one of my parents did beat me because I was correcting them that my pain is actually physical and not psychological and that I'm trying to get a job even is so much pain. Everyone hates me and I hate everything.
I've tried everything that's in my reach. I don't get the support that I need. So I don't see other options... I really didn't want to die. But at this point... it's so much chaos. I carry it in my body.
Because I get all kinds of crazy symptoms in my body, the thought of death is all time in my head. I don't have the money to do exams, like what even. I got so stressed that I a
Excellent Thread by the Chair of "Medical Education Group"
Rest of thread:
That can leave those suffering & grieving without the answers they desperately need.
As a person in the chronic pain community, I have watched that lead to immense suffering, unending grief and so much loss…and as a result increased self medicating, recklessness, suicides, requests for MAiD.
I understand how it gets there, because I live with #ChronicPain too. (Several types.)
And I struggle to hang on most days.
Especially in the face of the additional minimization/gaslighting we face in healthcare/society due to poor quality research and a serious lack of understanding of CP.
So what do we do about it?
First, HOW we talk about these issues matter.
We need to stop referring to “lifestyle choices” (places fault with patient) and start recognizing and addressing the real systemic barriers to healthy living that exist (where the faults actually are).
Misogyny, ableism, racism, financial insecurity, food insecurity, housing insecurity, lack of disability suppo
which is worse? Severe dizziness or a migraine in my knee?
Mother of Popocatepetl. From Oct. 2021 til about Oct. 2023, the meds a doctor put me on for two weeks in 21 messed me up so bad that my tired pains were extremely masked by severe dizziness, but they came back last year, and damn, I still prefer the pains over what those meds did (and I still have some problems...Though, thank the Aztec gods I can eat some cheese again. That pissed me off, heh).
I am kind of seriously pissed off at the doctors. I spent so god damn much money trying to fix the shit their meds did to me, that I could have attempted to find a decent chair to help with these pains...or even a fucking cheap shed to have a place to work (to try and make more money)...God damn, so much fucking time and money wasted...Grrr!
End rant...Now try to relax and be very careful shoving my back buddy into my knee as hard as I can.
Knee kept me awake all...night...
I'm almost 50, and my knee kept me awake all night long. I have a son going in for a colonoscopy, so I tell my wife I may not be able to stay awake...I got yelled at for it.
God damn I wish I could find a job my broken body could do and get the fuck out of this house. Just leave.
End rant.
I even bought this bloody mat
now I put this yoga mat wrapped under my back when it hurts too much
it doesn't really reduce the physical pain
only financial suck cost
Dandelion in Sidewalk
Not as I envisioned, but still not too bad.
About four years ago I had come up with this kind of design for a dandelion as a representation of pain. Which, this one gives a sense of loneliness, too (at least for me. My wife is beginning to show her anger and hatered towards me again. So it's definitely how I have been feeling today).
The likes of the BBC, Guardian, and Daily Mail are set to have their own disinformation used against them
A campaign group will target UK media outlets during global ME Awareness Day - calling out what it calls systemic "mis-and-disinformation"
A campaign group will be targeting UK media outlets during global ME Awareness Day – calling out what it calls the corporate media’s systemic “mis-and-disinformation” relating to this chronic illness.
It comes amid growing concern that the same psychologisation certain medical professionals and the media have enacted towards myalgic encephalomyelitis (ME, also known as ME/CFS) patients is now also being used against people living with long Covid.
ME Awareness Day: what is this debilitating illness?
ME is a chronic illness that affects almost every system in people’s bodies – like the immune, nervous, digestive, and hormonal systems. Many of its symptoms majorly impact a patient’s day-t
MSContin is the worst for me
So I was prescribed 15mg MSContin on top of my 4 7.5mg Percocets daily. Oh my God. I had SO MANY SIDE EFFECTS. It made me violently ill. The first week I was actually happy because it worked very well for the pain but the longer I took the more it wrecked me.
Once the side effects hit I was puking like every 3 days with an incredibly sensitive stomach daily so I had to be careful even drinking water. Then I realized I hadn't shit in like 6 days. On Tuesday morning I ended up projectile vomiting all over my bathroom trying to make it to the toilet at 8am. That wasn't the first time it happened.
I decided at that moment I'm done with this pill. Can't keep putting myself through this.
I had my pain apt yesterday and he is gonna switch me to oxycontin because I have no side effects from Percocets. I'm either a no side effects or I'm dying side effects person. No in-between. I've always been like this.
So I just gave up on taking my morphine. I've been putting myself through withdra
Welp, I've officially gotten old.
Seen it's been rather quiet here, I figure a new off the wall message might be helpful to break the silence, 😉
Anyway, on top of the many chronic pains, and the medicinally induced GERD thanks to the chronic pains and the paranoia over opioids (Yay, to being a guinea pig...👿 ). Now I get the old man stuff. A pulled muscle where I never knew a pulled muscle could be. Hairs, tickling the side of my nose...GROWING FROM INSIDE OF MY NOSE. Long hairs on the sides of my ears..."Look, Ma! I'm a linx" 🙄 .
Then there's the brain drain...Hoo boy, the number of times I almost cut myself or have to be extremely...I mean extremely careful when using my power saws...Yeeeeeeesh!
And, to make this circus even more fun, I really really should see a doctor...And I have decided to just say screw it and go into deep debt...Me thinks the medicinally induced GERD has gone into a new phase. The first year was extreme dizziness, difficulty breathing, plastic smelling sweat, and bad chest pains. 2nd y
haven't had a good day for weeks
The dishes are piling up. My apartment is a mess. I can't stand long enough to make a decent meal. My tasks are falling way behind at work. The physical therapy exercises just stopped helping one day. Ibuprofen makes my stomach cramp, pretty sure I have a hernia, or at least it's warning me it's close. Weed doesn't dull the pain anymore. I miss my good days.
It's caused backlash among the chronic illness community.
It's caused backlash among the chronic illness community.
While Dragon's Den viewers were still buzzing over the addition of newest honorary dragon Gary Neville, social media was also discussing the devastating impact Thursday night's show had on the disability community.
ME (myalgic encephalomyelitis) is a debilitating chronic illness which causes life-changing fatigue, muscle and joint pain, brain fog and headaches to name but a few symptoms.
When a young entrepreneur popped up on Dragon's Den and claimed that a "personal healing journey" that included ear seeds had aided her recovery from ME within 12 months, most of us living with the condition rolled our eyes, as there's famously no scientific cure for the condition.
Some in the audience were intrigued, however, and the "Are you watching Dragons' Den?" messages started rolling in from friends and family.
What Giselle Boxer presented were needle-less acupuncture
MME limits really bother me for people with chronic pain
I'm already at a pain mgt clinic but I've never seen a doctor there so I decided to checkout another one. So I asked my neurologist to refer me one and I had the appointment with them today.
They're great and I would actually talk to doctors there which I like but they have a MME requirement which is much lower than the CDC recommend max which is 90MME. This pain clinic has a max of 50MME.
Not only that, but Colorado protects doctors here from lawsuits and says it's okay to go over 90 mme if needed
I currently take 40mg hydrocodone a day so there's only room with 10mg more if I switch to this clinic.
That really sucks because he told me they would rotate meds for tolerance reasons so they would switch me to oxycodone then a few months later morphine and so on so tolerance doesn't build for one medication. But that 50mme is tough because for me to be able to do basic activities and be active in life I'm going to need more than that.
It was so nice to be able to talk to a doctor