That's utterly disappointing. I'm so sorry they're not taking you seriously and that it's such an uphill battle. I mean, it's obvious your body is telling you something is going on. You deserve better. Maybe that upcoming GP appointment will provide some answers or get you closer to a treatment option. Hope you're hanging in there okay, love, and that you're able to get some rest despite everything.
When my joints don't protest too much, absolutely. Even just a 20 minute walk can really make a difference and slow me down enough to sit still/lay down to sleep.
Quickly, we must group hug the owl to keep them from shaking apart!
Good to hear that you're on the mend, at the very least. Hopefully everything levels out soon and you can catch up on some good sleep.
That's wonderful news!
That's actually decent news about the MP response! I really hope it pans out, that would be wonderful to have that actually addressed. Fingers crossed that your results come back soon, and you can get some answers.
Thank you for your response, I learned a couple of things just from you sharing and I appreciate it! A lot of what you said really resonates with a lot of my own experiences.
Welcome in! I'm gonna try and respond as best I can, please let me know if at any point I'm unclear or come off in a negative way.
Hopefully that's not too ramble-y, and I hope that answered some of your questions.
Good grief, I remember when you first posted about having to fight them on that medication the first time. I hope it goes in your favor comrade, it is absolute nonsense to put you on something that will have no benefit.
Did anything ever come from your recent bout of tests you got done? I'm catching up on the comments, but I'm glad you were able to get the cord for your laptop, and that they moved up the next surgery. Hopefully you can get some relief from the tingling and pain soon. Really hope it's not like an allergy or something. Sending hugs and peace, love.
Your resume sounds downright impressive, honestly. Job hunting is so awful, and I'm starting to think a lot of places are just auto-rejecting applications and they don't even get seen by real people. It can really feel hopeless sometimes...most of the time, really.
I'm so sorry work is sucking out all your energy, too. It can't be easy juggling all the things you do. I hope you can get some rest and find some time to chill and just recuperate. You deserve a break.
I hope they keep working in your favor, comrade. Mood swings and stuff around that time can be absolutely wild. I'm glad you got something to that seems to be working.
I think it's best to follow your prescriber's instructions for methylphenidate, since the drug affects people in so many different ways and can be used to treat different things. You're probably seeing so many varied responses because dosage, other drug interactions, and medical history can change how it works for you.
People irl seem to dissociate when I even mention covid, like a trauma response that makes them completely shut down and mentally disengage with blank stares like some pavlovian response. I get questioned about my mask by strangers, medical staff, checkout people, etc. all the time and have had better responses telling people that I've got terrible allergies.
Edit: scrolling through a couple other posts and seeing how active the sub is was... horrifying.
It's interesting how trauma and a lot of disorder symptoms can overlap and manifest in similar ways. Hopefully the clarity around it can help with that part of your healing journey going forward.
Yeah one of the dipshits in charge is quoted in almost every article I've seen saying they didn't have proper warning, but you can just search the NWS San Antonio twitter or the spc noaa website to see that warnings for an initial forecast of at least 5-7in of rainfall were issued July 3rd in the afternoon, with continuous updates and warnings issued all through the night as they monitored the storm. They did the best they could.
Nope, I just crank the volume up on my phone speaker and keep it nearby. Sometimes I'll snuggle it under part of my pillow so it's as close to my ears as possible.
I'm so tired of people blaming the NWS for this.
Thanks :)
Yep, I have this app (on android) called White Noise Lite that I've used for years that lets me combine different noises like rain/white noise spectrums (pink, blue, green, etc.) that also has timers and alarm settings built in. It really helps block out stuff like traffic and hvac, which can drive me mad some times.
Disabled Community Megathread from June 30, 2025 to July 13, 2025
If you carry one thing with you today, let it be this: you are beautiful, you matter, and you are loved.
As always, we ask that in order to participate in the weekly megathread, one self-identifies as some form of disabled, which is broadly defined in the community sidebar:
"Disability" is an umbrella term which encompasses physical disabilities, emotional/psychiatric disabilities, neurodivergence, intellectual/developmental disabilities, sensory disabilities, invisible disabilities, and more. You do not have to have an official diagnosis to consider yourself disabled.
Mask up, love one another, and stay alive for one more week.
Billionaire Buffet (feat. Kasane Teto) - Flanger Moose
CW: cannibalism, meat and dairy consumption, American politics
If yewtube gives you trouble here's the original youtube link
Slow roasted tomato chickpea pasta - CW: Original recipe offers use of different stocks/broth (meat or veggie) but my recipe alternative is vegan
Fun fact: mine looked nothing like the website picture because I altered it to be vegan, less oily, and more saucy. I included a link to the original but I'm putting my modified version below.
Ingredients
- 1/2 large yellow onion, or whole small one, finely chopped
- 6 garlic cloves, minced
- 1 tsp dried oregano
- 1/2 tsp crushed red pepper flakes
- 1 (15 oz) can chickpeas, drained and rinsed
- 1 lb cherry tomatoes
- 1/2 cup vegetable broth (I actually used a mushroom bouillon cube)
- 3 tbsp olive oil
- 1/4 tsp Kosher salt
- 1/8 tsp ground black pepper
- 1 (15oz) can crushed tomatoes
- 8oz (dry) pasta
- 1/4 to 1/2 cup of pasta water
Instructions
- Preheat oven to 400° F.
- To a large baking dish (mine was glass 9x13in), add all ingredients except the pasta. Toss to combine.
- Bake for 50-60 minutes, stirring halfway through, until the tomatoes are bursting and the chickpeas are golden brown.
- While the veggies are roasting, cook the pasta according to the package instructions. Dr
I want to share this site called Stimpunks, which I find myself frequenting when looking for information, inspiration, affirmations...all the 'tions
This is an org I came across a while back. As it says in the pic and on their homepage, they are all about "Mutual Aid and Human-Centered Learning for Neurodivergent and Disabled People".
Their 'encylopedia of difference' has a huge plethora of information on so many topics. Hope ya'll find it as helpful as I have.
"Stimpunks was forged in the quest for survival and inclusion. We are a 501(c)(3) nonprofit built by and for neurodivergent and disabled people. Stimpunks was founded in December of 2021. We are a community affair. We’re Autistic, ADHD, OCD, PTSD, Tourettes, schizophrenic, bipolar, apraxic, dyslexic, dyspraxic, dyscalculic, non-speaking, and more. We’ve collectively experienced rare diseases, organ transplants, various cancers, many surgeries and therapies, and lots of ableism and SpEd. We’ve experienced #MedicalAbleism, #MedicalMisogyny, #MedicalRacism, #MedicalTrauma, and #MedicalGaslighting. We understand chronic pain, chronic illness, and the #NEISvoid “No End In Sigh