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Posts
2
Comments
17
Joined
1 yr. ago
  • DAO enzyme deficiency is too slow. I I have pain reactions instantly. Like I have reactions just from putting stuff in my mouth, if it has a lot of Histamin, lol

    Antihistaminika DO help, massive improvement once I figured it out.

    Thanks for your answer!

  • I think so too, but this full body pain reaction just a few seconds after I put any trigger in my mouth is just hella strange, I didn't see it described anywhere -.-

    Don't think it's MS, my ex has MS, so we would have prob figured that out.

    Rheumatoid Arthritis doesn't fit either, as the Pain is mainly located in Muscles ect, though joints as well.

    ... Yeah my best explanation is still somewhere in the cluster of me/cfs-fibro-mcas Though it just seems like a combination of the last two which is weird.

    Thank you for your extensive answer, I appreciate it a lot!

  • Chronic Illness @lemmy.world
    MaryReads @lemmy.cafe

    Help with Diagnosis?

    So, I know that getting info from here isnt the same as an official diagnosis, but doctors have been absolutely useless. I am still looking for a diagnosis that fits but it don't really find anything. I would welcome any person with ideas where to look for more info.

    15 months ago, I had an infection, though I tested negative for Corona several times.

    Afterwards I got flu like symptoms and didn't get better until I crashed a few weeks later.

    After Several Months with strong Fatigue, Nausea, ME/CFS like Symptoms, where I barely could leave the house I was doing okay ish. Then Symptoms got worse again and I developed ChronicPain in in Muscles and Joints all over my body. It somehow seemed connected to eating but it took a long time to realize that it is connected to Histamin.

    So thats where I'm at: I thought it might be mcas, but my "only" symptom after eating anything with histamin is pain and fatigue. It doesn't really fit the "allergic reaction" I see described as typically for

    196 @lemmy.blahaj.zone
    MaryReads @lemmy.cafe

    Fuck Eddy Rule

  • My Phone has three options for words.

    Started with "Women are":

    • Women are cute
    • Women are still interesting story
    • Women are super

    (Only started with "Women"):

    • Women having voting rights