Partially sighted stroke and cancer patient, learning to walk again, going through months of foot surgeries. Fighting a disability benefit appeal. I won my last appeal just 2 years ago and am now going through yet another one. All I want is peaceful, painless assisted suicide.
The more financially strapped people get, the less help is available. The richer you are, the more you get.
It seems that as life becomes more expensive, the amount of financial aid available gets drastically reduced. The latest thing to go is Macmillan cancer charity. They used to give struggling cancer patients a grant every 2 years. It had lately gone up to £300 a year. I myself received one of these grants in November 2023, I was due to become eligible for another this November coming and was relying on it. Now I won't get it because Macmillan have decided to save money by no longer giving grants and no longer giving benefit advice to cancer patients (so they can cut staff numbers). Meanwhile there are news reports that they are hiring more managers on inflated salaries.
My local council used to give a £150 cost of living grant to low-income people twice a year. It was a lifeline. Then they cut it down to £100. Now they've scrapped it altogether. Why? Because:
The government decided to cut winter fuel allowance. They used to give all Old Age Pensioners the winter fuel al
Well done!
A while ago people were helping me search for a piece of music....
....that I had heard on youtube and loved but couldn't find again. People made suggestions to no avail. I've found it, it's track one on this compilation and I think it's beautiful:
I used to do them a lot but they're impossible to get hold of now. Even tried growing my own on several occasions but it didn't work out.
The paralysis lasted for a few hours this time, that at least seems to be going now although the tingling in my face and crotch are still quite intense, and I don't seem to be able to move my right foot properly. Mine are often scent-triggered too and that's something I have no control over. My landlady doesn't gaf and uses scented shit in the house and if I go outside and someone's wearing perfume or whatever, it happens. There is no escape. And sometimes they just happen with no obvious trigger.
I'm just worried they'll remove my mutual aid post or something. When i spoke about this at lemmy the only response I got was someone basically telling me to go away because it's not the place to talk about this.
I am literally on both of those drugs right now. They have done nothing. I've had every drug from topiramate to amitryptaline, to rimegapant to sumatriptan to rizatriptan, as well as other meds i can't even remember the names of now, I've had nerve blocking injections in my head, supplements and dietary changes. Nothing works.
Also these migraines are not my only issues, I'm also a cancer and stroke patient and having serious issues with those things. it's great that you got relief but I've struggled on long enough.
I don't think I can cope with these migraines any more.
My migraines have become truly unbearable. A few days ago I got a weird tingly feeling in my crotch. It felt like menthol had been rubbed on it. At first I thought i was having some kind of allergic reaction. After hours the feeling spread down my right leg, then the next day into my right arm and finally into the right side of my face. I finally managed to get seen by a doctor who diagnosed it as a hemiplegic migraine, a migraine that affects one side of the body.
This is my second hemiplegic migraine but i didn't recognise what it was as the first one presented differently. The last one, I felt dizzy and like cold water was being poured down my face and lost the movement in my right hand. I thought I was having another stroke that time and went to hospital but it was a hemiplegic migraine.
anyway this time after the diagnosis I took a migraine med that got rid of the problem... temporarily. Today it's back. My crotch is again tingly and mentholly, it feels horrible and a
I had my final foot surgery today.
I just wanted to say, thank you so much to the people here who made it possible. Without your help it wouldn't be over and done with now. Life has been hard and miserable for a while now but at least this is one problem crossed off the list.
My mental health is now worse than its been in a while.
I never knew just how much walking around outside improved my mental health until I lost the ability. While going through this benefit appeal, cancer treatment and recovering from a stroke, everything has been so hard but being able to walk down to the beach and spend some time outside with my landlady’s little dog each day, made life tolerable. Then I got stuck inside for a while due to my foot surgery, and this other one coming up on Thursday. Being stuck indoors has made life much more frustrating and stressful and given me nothing to look forward to, but at least this had an end date. After recovery from the surgeries I would be able to walk around again. But now I have developed achilles tendonitis. It’s the second time I’ve had it, the first time I was in a plaster cast for 10 days and couldn’t walk properly for months. This time who knows how long it will last. Google says it could take a year to improve, or it might never get better. I’m a lot older and sicker than the first ti
Do you think there is any point to life?
I keep wondering why my life turned out to be so hopeless and miserable. Did I do something in a past life and this is my punishment? Is it bad karma? But then karma has never made sense to me. If you murder someone, and karma decides you then need to be murdered to pay for that, it requires someone else to commit murder so you get your karma. The cycle would never end.
Is the New Age idea that we choose our lives before birth true? Do we choose everything that will happen to us in advance so we can learn something from it? Or is that just cope?
Are we just evolved pondslime who mutated into humans by chance and none of this means anything?
Why is life so incredibly awful for so many people?
What other sub-hexbears would you like to see on this site?
I think it would be fun to have a dream interpretation section.
Shopping has just become an even more dystopian experience.
I went to Sainsburys today. As I got to the self-checkouts, I could see there was a much bigger queue than usual. I soon found out why: they have just updated all of the self-checkouts, and the new software is glitchy. About half the people there checking out were requiring assistance from the staff, and the three staff members could barely keep up.
For a while now all of the self checkouts have had screens above them that record, or at least watch you while you scan. You can see yourself in the screen, I assume it's to deter theft. I started scanning my items, and immediately I found out what the new software is. On the first item, the screen snapped an image of my face, and kept the image on screen above me, while the screen in front of me that shows the scanned items got a big warning flashing up on it, declaring that I had bagged an item that I hadn't scanned.
Both screens froze like this, my face on the screen above with a message in huge letters on the screen below decla