
GPs around the country are withdrawing from shared care arrangements for ADHD as part of collective action, Pulse has learned.

General discussion and support for ADHD in the UK.
RULES
Not affiliated with r/ADHDUK or the charity ADHD UK
Other ADHD Communities:
Other resources:
[r/ADHDUK FAQ](https://ww
GPs around the country are withdrawing from shared care arrangements for ADHD as part of collective action, Pulse has learned.
This was being discussed on Radio 4 today.
LMC leaders are asking GPs to stop prescribing ADHD medication for patients who have been diagnosed elsewhere as part of collective action.
In several areas, Pulse has learned that GPs have stopped entering new shared-care agreements for ADHD, however some LMCs wish to go further and have asked GPs to also stop agreements for existing patients.
And at least one trust has already highlighted the impact of GPs pulling away from providing care to adults with ADHD.
In Essex, GPs have been advised by LMCs to stop care for patients on adult ADHD pathways in order ‘to focus capacity on core services’.
A letter to practices recommends they inform Mid and South Essex ICB that they will be ‘withdrawing care to adult ADHD patients currently under their care in three months and to no longer accept new patients’.
The letter said: ‘This is a rapidly growing issue with multiple providers offering opinions and diagnoses of variable credibil
'I waited five years and my life fell apart' — inside the ADHD waiting list crisis
After a recent investigation found that some areas in the UK have ADHD diagnosis backlogs that would take eight years to clear, Emma Loffhagen speaks to some of those on the frontline
Last month, a BBC investigation found that many areas of the UK have such long backlogs for adult ADHD assessments that it would take at least eight years to clear them. The investigation suggests there are currently at least 196,000 adults on waiting lists across the UK.
...
Since 2019, there has been a 51 per cent increase in prescriptions for ADHD medications such as methylphenidate and lisdexamfetamine, according to the Nuffield Trust. But it has still not caught up with demand. In April, the trust said 24 per cent of patients referred for ADHD in England were having to wait one to two years for an assessment. Rising demand fuelled by increased awareness of ADHD symptoms, coupled with limited capacity, has contributed to the backlogs, with three trusts having closed their waiting lists completely.
NHS Said No
It's been about eighteen months since I first spoke to a doctor about getting referred for an adult ADHD diagnosis. The doc said basically "I'll refer you but don't expect anything because you're holding down a job and a family so you must be doing alright". I had my screening interview back in June, and that was followed up by two web-based questionnaires, one for me, and one for an adult who was about when I was young. My mum filled this role. And it's off the back of this questionnaire that the NHS has discharged me, stating "ADHD is a life-long condition and we would expect differences to have been evident from an early age" and "[my] difficulties are not best explained by a diagnosis such as ADHD".
Unqualified as I am, I do still feel like based on my own research, ADHD is probably the best explanation for a bunch of stuff in my life. A guy I've spoken to a lot who has some experience says my lived experience sounds fairly textbook ADHD/autism as taking effect from my mid to late
A radical rethink of how neurodiversity is treated is needed for the NHS to keep up, a think tank warns.
cross-posted from: https://feddit.uk/post/10089820
The extraordinary rise in demand for autism assessments and ADHD treatments in England has overtaken the NHS's capacity to meet it, a think tank says.
Since 2019, there has been a five-fold rise in people waiting to see an autism specialist and a 51% increase in prescriptions for ADHD medication, according to the Nuffield Trust.
Growing backlogs and longer waiting times are negatively impacting people's daily lives, it warned.
It said a "radical rethink" was needed.
...
One out of every 100 people is on the autistic spectrum, it is estimated, while 2.6 million people in the UK have attention deficit hyperactivity disorder (ADHD) .
The Nuffield Trust said 24% of patients referred for ADHD in England were having to wait one to two years for an assessment.
On top of this, thousands of people with ADHD have been unable to get prescribed medication amid a major supply shortage.
Health experts condemn ‘irresponsible’ targeting of people desperate for NHS help
Wellness firms are exploiting a national shortage of ADHD medication to push so-called “smart supplements” as an alternative to prescribed drugs.
As patients struggle to get hold of medication – or face years-long waits for NHS assessments – companies are peddling unproved products as a “natural” treatment for attention deficit hyperactivity disorder.
In some cases the supplements are being marketed for use in children as young as three. In other cases they are promoted to young people via ADHD “influencers” on Instagram and TikTok, or advertised by salespeople in Facebook support groups. The claims made about their benefits include that they can improve focus, increase memory, banish brain fog and boost brain power.
Health experts said that the claims lack any robust evidence and could give patients and their families false hope.
My ADHDudes! Meds are coming back in stock
Great news people. I had a consultation with my provider (ADHD-360), they told me that elvanse was trickling back into stock.
They updated my prescription from Amfexa to elvanse, I ordered that evening (Tues) and the meds are arriving today!
So it might be worth getting in touch with your provider and seeing if you can get the good meds 😊.
Might be worth noting that they asked how I was getting on with Amfexa. I told them honestly; it's just not as good. So maybe they are taking into account people's tolerances when deciding.
I am a teacher and i want to do better
So basically I'm a college teacher and I've been doing it for less than a year, our new set of learners has multiple people with ADHD and honestly they are fantastic people and they have great input for the lessons but they're also very disruptive at times.
I just want advice from people in the same boat on what I can do to be better for them. I never expected for a single day in my life that I would become a teacher so I don't really know what I'm doing in this situation and I don't want to be a dick about it cos it's not their fault.
Thanks in advance.
Henry Shelford (founder of ADHD UK) on BBC Breakfast
Click to view this content.
I also wanted to post this great segment from BBC Breakfast, currently a pinned post on r/ADHDUK.
I found it both extremely validating and upsetting to see the exact anguish on his face that I've been experiencing.
The link should take you to the start of the studio segment (2:18) but the clip that precedes it is also worth your time if you have it.
If anyone in your life wants to know why you're struggling right now, I'm yet to come across a better and more concise resource to express it.
I think the best way I can explain the random, compulsive talking is
that it's like my brain doesn't instinctively understand that no one is experiencing what I'm experiencing; it treats what I see, hear etc along with my internal monologue like a movie that everyone is watching.
Charity ADHD UK says NHS’s failure to act sooner is devastating for those living with the condition
The irony
of having so much motivation to set up an ADHD community, then after a while it becomes the newest thing collecting dust in the corner.
Weird thing I do to keep from burning my house down.
cross-posted from: https://lemmy.world/post/1551255
When I am cooking, I have trained myself to set a timer for 10 minutes.
My rule for cooking is "don't leave the kitchen", but that isn't realistic. I wander without realizing. It's an issue. I've been in another room and the timer has gone off and I'm like,"Oh fuck!". I completely spaced it.
Anyway, when the timer goes, I set another timer for 10 minutes. Rinse and repeat until the stove is off.
It's okay to take time for yourself
Like with other neurodivergent conditions, meeting the expectations of the 'normal world' can be exhausting for ADHD people. Regulating yourself through the eight hour work day can leave your head feeling stuffy and like it's about to burst but there's no shame in taking some time for yourself after the work day.
A lot of us will have spent our lives being told we're "lazy" and "underperforming", so it's hard to shake the feeling that we should always be doing something productive. But "productive" can mean having some downtime if it leads to greater motivation and mental clarity later on.
Of course, this isn't always possible if there are other things involved like family or other work commitments, and it's whatever works best for you. Just don't feel like every moment of your life has to be dedicated to furthering 'the bigger picture'.
Don't be afraid to watch the next episode of your new favourite show or sink another hour into whatever game has you hooked right now. Read another
Support for people with partners with ADHD
I dont (I think) have ADHD, but my partner is in the process of pursuing a diagnosis.
I was wondering if anyone was aware of any resources that would help me better understand and support them.
I think the strain it can put on relationship is quite well documented, so I would appreciate resource that would help me.
I've tried some podcasts aimied at people with ADHD, and that gives me and insight, but it doesn't help me understand want to do to be more supportive or helpful, as they just tend to moan about things people do wrong.
Anything would be helpful. Cheers all!
Your friendly reminder to stay hydrated
It's a hot one out there for a lot of us today so remember to take a water bottle with you, keep drinking and refill it when it's empty. Also avoid staying in direct sunlight for long periods of time wherever possible.
This is especially true if you're taking stimulant medications as these may dehydrate you, making you more susceptible to heat exhaustion and sunburn.
Refill can show you the locations of water fountains where you can refill your bottle for free.
Everything has its place
If you keep misplacing something, keep it in a set place or places in each room and discipline yourself in doing so until it becomes habit.
It's usually best to put something in the first place you think of when trying to find it, even if it might look out of place there.
As an extension to this, I've found putting most of my day-to-day things in a bag/backpack etc. helps the most. It's whatever works best for you but I always keep my keys, meds, cards and a USB cable in my bag, and that goes out with me basically everywhere. Just make sure you're not carrying half your life around with you!